ABLEISM CARTOON: "Able As De Facto Standard"

ABLEISM CARTOON:  “Able As De Facto Standard”

Three people are talking in an office canteen.
A balding man with a mustache, wearing a blue sportcoat and khaki trousers, is seated and assumes an air of superiority with hands behind head, saying,
“WELL I DON’T HAVE A PROBLEM.”
A white Little Person woman who has bright-red hair, wearing a black dress and red shoes, is standing by a coffee table and says,
“SO IT SHOULDN’T BE A PROBLEM FOR ANYONE ELSE?”
A black woman wearing a purple leather jacket and colourful top, is seating on a bench, spreading her arms wide as she says,
“WHO MADE YOU THE STANDARD BY WHICH ALL OTHERS ARE JUDGED?”
ABLEISM Abled as standard 2018-01-09

FACEBLIND CARTOON: Group Photographs

Prosopagnosia (faceblindness) is the inability to recognise people by their faces. That includes one’s own face. I can only identify myself in photos if the clothes are familiar and I remember the event. School photos, team photos, tour photos, departmental photos, all are landmines. I’m puzzling myself out, don’t ask me to identify the other people!

PROSOPAGNOSIA_Group-photographs-300dpi-signature
Black and white line drawing of a hand holding an old B&W school class photo. The caption written on the cartoon says:  Read one of those “How to Find Yourself” articles. Disappointed. I’d hoped it would tell me how to identify myself in large group photos.

FACEBLIND CARTOON: In the Cafeteria

Prosopagnosia (faceblindness) is the inability to recognise people by their faces. You never know when you’ve blithely walked right past a neighbour or classmate.
Even those people more familiar to you who you might be able to identify – slowly, consciously, by their hair, voice, or gait – are easily missed when they’re out of the places you associate them with, i.e. your doctor at the grocery.
It’s hard to make friends when you can’t recognise people. Worse, others make so many misassumptions about you.

PROSOPAGNOSIA_Cafeteria-300dpi-signature
Cartoon of myself at a cafeteria table, thinking, “I wonder if I know anybody here?”  At a table behind me, one woman is telling another, “… she just walked right past me, no Hello, nothing. She didn’t acknowledge she knows me! Just so rude.”

 

WE MUST CREATE CHANGE

I was going to call this my “Hope For 2015”, but that is so passive and useless. Anybody can – and lots of people do – post warm, fuzzy notes with Hopes for the New Year, and others click and share. Lovely.
But this is NOT all warm & fuzzy. It’s literally dead serious (with many murdered throughout the year), and quite often blunt, because I am blunt at times. It’s also a call to a change of perspective for some of you.
Deal. Think about it. I’m not a lone voice. Click and share.

MY CALL TO ACTION IS FOR YOU TO READ THIS THROUGH, THINK, AND SPEAK UP. ALL YEAR LONG.

And the next year and the next.

This isn’t about some stranger, or Those Other People, or “That Kind”.

Children with disabilities or other differences are not diseased or broken. The same is true for adults. Yes, those “poor, little disabled children” grow up into disabled adults. Gee, so where’s the concern now? It sure isn’t at work; in the U.S. general unemployment is at 5.3%, but for disabled adults it’s twice that at 10.8%.
Nor are autistic or ADHD children some kind of modern mystery; millions of such adults have been around for decades, just unrecognized for lack of diagnostics. Most of us are profoundly relieved to find out Why. We still have to deal with the details, but that’s easier when you know that not all your difficulties are from some kind of moral failing, or from a lack of trying (and trying, and trying).

WHAT, YOU NEVER HAD KIDS LIKE “THAT KIND” IN YOUR CLASSES? YOU KNOW WHY?

Some were kept at home, because until passage of the IDEA in 1975, US law did not require public schools to teach everyone.
Some were warehoused in institutions, badly treated, undiagnosed or misdiagnosed, and oft uneducated.
But many of us were there; how we struggled through school and life, without accommodations or understanding, and often the target of bullying by peers and even school officials.
Untold numbers of women and men just knew themselves inexplicably “a bit odd”, and did best they could; some succeeding, others not so well.
At worst are those who not only lacked resources, but were shunned by society’s classism, ableism, racism and sexism, and (if still alive) are found among the imprisoned, derelicts, addicts, abused and enslaved populations.

YOUR CHILDREN AND EVEN COLLEGE STUDENTS WILL LEARN DIFFERENTLY, SO YOU MUST ADJUST

We are neither inherently stupid nor incapable of learning. Learning differently means teaching differently. Find what works. Everyone has limits, but a consistent lack of success means you should use another method, as well as more time. Sometimes the learning is highly irregular in pace. Tie learning to interests to motivate your children and students.
Also, be aware that sometimes the “simple basics” may be entirely bypassed by some students who leap to master higher concepts, albeit often forever struggling with those seemingly “simple basics”. People are humans, not robots. Learning is not always linear.

COMMUNICATION IS NOT JUST SPEAKING

Never assume that just because someone is nonverbal they cannot communicate. If you’re not getting their messages, then *you* are doing something wrong. Nor should you assume that because someone is nonverbal that they cannot understand what people say (though the processing may sometimes be delayed). Nor assume that because someone has been nonverbal for years that they’ll never speak. And damn, will you get an earful.

INCONSISTENCY IN DAY-TO-DAY ABILITIES IS FRUSTRATING FOR ALL, AND NOT A CHOICE

Importantly, just because someone is able to speak or do a task one day, that does not guarantee consistent results. It’s the nature of disabilities — regardless whether considered mental or physical – all involve the brain. Brains are funny things, and many of us have a few buggy Beta-version programs in our wetware. It’s frustrating as hell for all involved.
But don’t assume the “could-then-can’t-now” is intentional. “Oh, he can hear me when he wants.” “Well, you could solve those equations just fine yesterday.” I can guarantee that after a lifetime of such, ridiculing people and punishing them for things they cannot help only increases performance stress.
While that stress might increase focus from sheer terror, it often squelches overall functioning. (Do you want me to listen to you, or try to recall yesterday’s process, or slowly figure it out on my own? I can only do one — if my stomach will stay down.)

TRAMPLE THE TROPES

Ignore the media tropes and centuries of religious hype: disabled people are neither inherently amoral, soulless and evil, nor are they infinitely happy, friendly and angelic. People are people. A few will be nasty bits, some will be profoundly good sorts, and the rest are just ordinary folks who get mad, sad and glad, who screw things up sometimes, and who will also serve others selflessly despite bearing more abuse than anyone should.
We are definitely not incomprehensible, incomplete, little autism-puzzle-pieces, unloving, unlovable, or uncaring.
We are whole people with all the same cares, needs and wants as all humans. Beware — disability happens to anyone at any time. We aren’t a Them, and YOU can be among the world’s 15% in just one day. We are all Us.

STOP “TEACHING TOLERANCE”

Because tolerance means putting up with something one doesn’t really like, or that doesn’t really belong. We want full-fledged ACCEPTANCE.
Nor should we only be acceptable if we can somehow “overcome” our differences enough to pass for Normal Real People. Trying to “pass” all the time is exhausting, and invariably breaks down, oft resulting in the [supposed] Normal Real People assuming that one is lazy, stupid, crazy, all the above, or worse.
Training children for hours a day how to artificially perform “acting normal” does not serve to help them learn how to function best in the world. Yes, of course teach good manners, social and work skills. But suppressing every twitch of one’s natural being adds to stress, making everything else yet more difficult. This is especially when performing like a “normal person” means not doing the harmless things that reduce stresses.

STOP THE BLAME

I must call out the terrifying, unaddressed assumption which underlies so much daily trauma: “The reason the disabled [children] are targeted by bullies is because they are perceived as being weird”. Despite the pervasiveness of this social theme in society, most people are functionally unaware of it, all the while instilling in their Normal People children the same message. Normal People children need to act normal, and not act like That Kind. After all, that’s how the Normal People know the others are That Kind, who’s Us and who’s Them.
But it’s the disabled and different who are taught, over-and-over-and-over that not only is it their fault for behaving or looking weird, BUT ALSO if they weren’t so weird, well then they wouldn’t be bullied. “Quit being so weird! Just say No! Just say Stop.”
Just say BULLSHIT. Because this is blaming the victim. The problem is not that everyone isn’t the same, the problem is that there are bullies.
Even worse, blaming the targets actually empowers the bullies, because the social story says it’s the victim is the one who is acting wrong, so it’s not really the bully who is to blame.
Let’s just top off all that existing anxiety and depression with the trauma of trying to seek justice, but being told again that, “Well it’s your fault, you know. Attracting attention by being weird, and bugging people. You need to quit making trouble now. You already take up too much of our time with all of your “special” needs. Quit whining and go deal with it. — But no fighting, because we’ll know it was you who started it.”
By the way, it’s not “just a kids at school” thing that everyone will “grown out of”. It continues on through college, and happens at work, too.

YOU CAN’T WALK IN THE LITTLE BOY’S SHOES;

THEY’RE FLOATING DOWN-RIVER

It is NEVER acceptable to murder disabled children. Nor should these repeated, horrifying events be considered “understandable” or “excusable”, with the murderers being pardoned just because their son or daughter had a disability.
Increasingly more prevalent in social media, the crime becomes insidiously deemed more and more acceptable. Murderers re-cast themselves as martyrs, acquiring champions to their cause. Throughout repeated blog posts and news stories, they bemoan how taking care of disabled children is just too unbearable, they had to take care of them every day of the week, there was never any relief or help. (Even though there was.) Cue the groupies’ hand-wringing and protests upon the villains’ behalf: “Oh but won’t you walk in their shoes, how they’ve given up their lives, this wasn’t at all what they wanted.”
For in true sociopathic fashion, the poor, long-suffering parents revel in the attention, announcing to the world – sometimes ahead of time — what they have done, and all the while describing themselves as the victims. The dead children (young or adult) are unwanted, and deemed unwantable, less than human just because they couldn’t speak, or needed medical treatments, or used a power chair, or didn’t play with their toys the “right way”, or wore adult diapers … No one would want to live like that; the thing’s better off dead. And what of the groupies? Well, where do you think people get such terrible ideas that it’s okay to kill one’s own children?

ENOUGH WITH THE “DISABILITY INSPIRATION PORN”.

Quit using those heart-tugging videos, walk-a-thons, telethons, and other grand-society functions to win your supposed Cosmic Brownie Points for giving us your pity. Please stop dumping upon us the largesse of your unwanted rags (so Victorian, so passé), or creating useless functions requiring us to serve as targets of unwanted helpful-helper-helpiness for your ego-boo.
Get disabled people out of “sheltered workshops”. Yes, people need work they are suited to. But the segregation and token sweatshop “wages” are an embarrassment and humiliation to all.

YES, CHILDREN GROW UP.

YEP, STILL DISABLED, BUT NOW ADULTS

Do not assume your children will remain permanently childish and incapable — they mature on their own timelines. Allow adults to be adults. Support their needs and interests, but neither dress them like children, nor expect them to live their lives in naïve pre-puberty stasis, without adult desires for socializing with adult peers, life-long learning, mastering skills for some kind of job (even if that job is “just socially productive work” rather than traditional work), and yes, having a love life, however that may be expressed.

YES, PEOPLE ALSO NEED ACCOMMODATIONS;

THAT DOESN’T MEAN “CURE”

Most disabled or different people are not looking for cures to magically change them into someone else, some kind of fantasy Normal Real person that their families wanted instead. Our differences may result from physical events, by random mutation, and / or genetics. Your genetics. We are family. I’m Me, and I like being Me. If you somehow changed all the differences in my brain, I wouldn’t be Me anymore, with all my quirks and abilities.
Of course it will be great to find a means for preventing migraines, epilepsy, fatal medical conditions, et cetera. But it’s also a sad fact that some people have been so convinced of their undesirability as disabled human beings that they can only see “cure” as a means to being an acceptable Normal Real Person. (Worst of all, some people commit suicide because they’ve been taught to hate themselves, as useless and unwanted.)
But what’s really alarming is all the fund-raising, talk, research, and work going on today to eliminate entire kinds of peoples. I’m talking about the thousands of selfish individuals and sociopaths who believe that anyone with neurological or morphological differences should not exist at all, because That Kind takes up too much time, money, and resources.
That’s not “looking for a cure” – that’s eugenics and euthanasia, the same ideas that led to the Nazi Aktion T4 program and other horrors. (In my youth, the state hospital was still in the regular habit of sterilizing people. Had I been institutionalized, I might well not have had my lovely children and grandchildren.)
Yes, we want assistance, we want things that help us achieve what we want in life. Getting the things one needs to learn effectively, to move about, attend to their own needs, to work, to play, to be a part of the community, to have lovers or families. These things should not be seen as extraordinary, special, absurd, or a waste of money, just because they aren’t the same kinds of things used by other people. 15% of the people in the world have disabilities. That is a lot of humanity, and many are uneducated, abused, neglected, avoided, or shut away, depriving the world of incredible amounts of untapped abilities and talents.

CALL OUT BULLSHIT. REQUIRE ACCOMMODATIONS. DEMAND ACCEPTANCE.

MAKE IT SO.

I bequeath the world a neologism, because there is need:

Te·di·a [tee-dee-uh]
noun
1. a plural of tedium.
2. the quality or state of multiple media being wearisome; irksome; tedious.
3. the quality or state of overwhelming tedium resulting from multiple, unrelated sources.
Overcome by the tedia of so-called “news” coverage and inane blather that displaced any real information, she resorted to drawing political cartoons and posting them on the Web.
Lacking sufficient mental stimulation from either of his jobs, and commuting without a working radio, he found himself daydreaming and telling himself jokes to allay the suffocating tedia.
_____
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I bequeath the world a neologism, because there is need:

Neither daft nor a bit deaf, just —

Well, more than once-in-a-while I misunderstand what I hear. Especially if I’m preoccupied, or the environment is noisy, and rather much if the other person is mumbly.
Quite likely the funniest Auditory Processing glitch I’ve had yet:
A grocery customer comes by and asks, “Do you have any haggis?”
(Mind you, I’m in the States; most groceries don’t even carry haggis, traditional or vegetarian.)
Turned out he was enquiring about
.
.
.
.
.
.
.
hacky sacks!
And no, we don’t generally carry those either, tho’ at the beginning of summer we get various toys in our seasonal aisle (sidewalk chalk, soap bubbles, jacks, pool floats and such).
Sometimes people ask for the oddest things at the grocery … this week someone wanted a printer cable — a serial port* printer cable! At least we got ourselves sorted before getting as far as the breakfast cereal aisle.
__________
* For you non-technical folks, that’s an older piece of equipment, not something you might find at a big supermarket, like cheap headphones, CDRs, or power strips.

I meant to get around to this earlier…

Displacement behaviour: when suddenly you feel the need to shift a negative emotion or stressor to doing something else. Right now, that means sorting tax papers instead of finishing a class handout or sending out a query letter. (During Finals Week, my displacement behaviour was cleaning the bathrooms. My apartment was REALLY CLEAN after Finals Week.)
One rationalisation I have at the moment is that I am correcting for last year’s “planning fallacy” — organising and tracking down information and figuring out the electronic filing of my federal and state taxes took me longer than I had anticipated. (Folks with ADHD are terrible about planning fallacies, because of the weird fluidity of perceived time.)
Ooh, I just found some neat links on new research into the causes and coping strategies for procrastination … *
STOP!  
That’s just a rationalisation. Set aside those tax papers for this weekend, and get back to the correspondence. Damn. And, *sigh*.
Meanwhile, here are some of my mottos that you may like:

Fidget quietly.

Pile by file**.

Perseverate positively.

Obsess functionally.

_____________
* Go to the Wikipedia page on Procrastination; they’re at the bottom. Sorry; I can’t be an accomplice to all of us wasting too much time…
** Which of course, later turns into File by Pile. But if your piles are already rough-sorted, then they don’t need much more than sifting out unnecessary junk (credit card offers and candy wrappers and expired sticky-notes), and maybe some date-sorting.
I prefer the OHIO method for when I get the mail: Only Handle It Once. From the moment it goes from the mailbox to my hand, I don’t dare set it down until I have binned the junk, set the catalogs and magazines in the appropriate reading zone (e.g. the bathroom), and push-pinned the bills to my bulletin board with the due dates highlighted. Otherwise, if I put the stuff down, it gets lost and forgotten in the dèbris of my desk!

The Silver (Smoke-) Screen

O.M.G. Last night at the grocery I was stocking non-prescription meds, and a couple came in asking for … colloidal silver! (Meaning, microfine silver dust suspended in water or another carrier.)
I was baffled; she explained that “Dr Oz” suggested it for sore throats.
“I don’t think we carry that,” I answered, somewhat stunned. “I’ve only used it in a research lab.” (In the teensiest of microdabs, to glue ultra-fine gold wire electrodes to insects.)
“Oh, it’s all-natural!” she asserted cheerfully.
Giant mental sigh and cringe on my end; lots of “all-natural” stuff can be all-naturally poisonous.
The guy with her added something to the effect of, “I bet you all don’t like Dr Oz.”
Er, I’m wary and alarmed by media personalities who promote misleading, useless and/or dangerous medical information. (Last year this celebrity was the recipient of the James Randi Educational Foundation’s Media Pigasus Award.)
But I’m guessing the customer was assuming that if people use bizarre “all-natural” remedies, then stores would not sell as many manufactured remedies. Hey, if I want salicylic acid (the stuff in willow bark and spirea that acts as a pain-reliever, fever-reducer and anti-inflammatory), then I will buy it as acetylsalicylic acid, AKA aspirin, because that formulation is less harsh on the digestive system, and you know how much active ingredient you’re getting.
When one of the pharmacists was no longer directly busy with [other] customers, I went up and told him about the customer enquiry. His eyebrows danced a bit at this latest oddity.
“The only thing I’ve heard about taking colloidal silver,” I began, and then the pharmacy intern nearby then chorused with me, “Was about the guy who turned blue!”
“It bio-accumulates, doesn’t it?” I asked, and the pharmacist nodded. That of course, was why I was careful to not let any dots of the lab stuff stick to me. Plus, any clean crumbs re-deposited could be re-used, especially if I held the bottle to the vibrating vortex mixer.
Note: there are antibacterial uses for various ionic silver (Ag+) compounds, such as silver nitrate (AgNO3), but the colloidal stuff is non-ionized metallic form, which has a different biological effect. Of course, poison is always in the dosage — too much silver nitrate can be equally bad. You can read about the hazards of argyria here at the Quackwatch site.
Oh by the way — if you want an “all-natural” remedy for the ordinary sore throat, may I recommend some strong mint tea with honey?

Speak More Kale

This was a major WTF moment when listening to the news today [transcript this link]: the Chick-fil-A chain is suing a Vermont tee shirt maker for copyright infringement. Their slogan is, “Eat Mor Chikin” and his is “Eat More Kale”.
Now, Bo Muller-Moore’s design uses:

  • a different font,
  • correct spelling,
  • a vegetable instead of an animal,
  • and no cows in his design.

Obviously, the design on his tees is nearly identical to the fast food chain’s! </snark>
The Vermont state Governor, Peter Shumlin, formed “Team Kale” as a fundraiser for legal fees to fight this absurd suit. After all, the Vermonter has been making these (and other) tee shirts for ten years, and this is how he makes a chunk of his living.  (Progress on the individually hand silk-screened tees is apparently getting a bit behind due to sudden demand, but there are also big green stickers for a 50-cent donation.)
The phrase “Eat More ____” sounded vaguely familiar, and some googling around quickly showed that it has been used throughout history!

vintage "EAT MORE MILK" advert for Cadbury's Dairy Milk chocolate

WWI Canada Food Board poster, "Eat more Vegetables! SAVE Meat and Wheat for our SOLDIERS and ALLIES"

"Eat MORE FRUIT" poster, Victorian Railways, Australia

WWI poster, U.S. Dept. Agriculture: "Eat More Cottage Cheese...You'll Need Less Meat...A Postal Card Will Bring Recipes...Cottage Cheese or Meat? Ask Your Pocketbook!"

There are other current usages of the phrasing, such as”Stay Healthy. Eat More Bacteria” for a dietary supplement. (After all, one shouldn’t discriminate between biological Kingdoms!)
If you do a visual google search, you can find an antique billboard on Route 66 that says, “Watch Your Curves. Eat More Beef.” from the Beef Industry Council. Apparently, in an earlier incarnation it was the Texas Beef Council, which also offered up quite an absurd pin-up girl (she’s ostensibly changing a tire, but without any cattle in the picture whatsoever). I mention these simply because they are the humorous antithesis of the “Eat Mor Chikin” cows.
BTW, kale is really tasty lightly braised (PLEASE, don’t cook the hell out of it — that just makes it bitter and stringy). Take your gently-wilted kale and sprinkle with some balsamic vinaigrette, or chop and mix into mashed potatoes (with bacon and onions, if you like), or add bite-size pieces in soups (miso soup with udon and kale sounds REALLY good this time of year).
What makes kale so great is that not only will it over-winter (meaning, you can get it from local farmer’s markets or CSA just about year-round, or else grow your own), but also that it has lots of iron, Vitamins A & C, calcium, and fiber.
Tasty Kale 'Curly Leaf'

Many kales are also quite ornamental as well — not just the frilly pink sort (grown for pretty more than nutrition), but also the tall green or purple-tinged sorts, which are often used for cold-weather plants in outdoor container arrangements.
The ornamental Kale 'Redbor Hybrid'