WE MUST CREATE CHANGE

I was going to call this my “Hope For 2015”, but that is so passive and useless. Anybody can – and lots of people do – post warm, fuzzy notes with Hopes for the New Year, and others click and share. Lovely.
But this is NOT all warm & fuzzy. It’s literally dead serious (with many murdered throughout the year), and quite often blunt, because I am blunt at times. It’s also a call to a change of perspective for some of you.
Deal. Think about it. I’m not a lone voice. Click and share.

MY CALL TO ACTION IS FOR YOU TO READ THIS THROUGH, THINK, AND SPEAK UP. ALL YEAR LONG.

And the next year and the next.

This isn’t about some stranger, or Those Other People, or “That Kind”.

Children with disabilities or other differences are not diseased or broken. The same is true for adults. Yes, those “poor, little disabled children” grow up into disabled adults. Gee, so where’s the concern now? It sure isn’t at work; in the U.S. general unemployment is at 5.3%, but for disabled adults it’s twice that at 10.8%.
Nor are autistic or ADHD children some kind of modern mystery; millions of such adults have been around for decades, just unrecognized for lack of diagnostics. Most of us are profoundly relieved to find out Why. We still have to deal with the details, but that’s easier when you know that not all your difficulties are from some kind of moral failing, or from a lack of trying (and trying, and trying).

WHAT, YOU NEVER HAD KIDS LIKE “THAT KIND” IN YOUR CLASSES? YOU KNOW WHY?

Some were kept at home, because until passage of the IDEA in 1975, US law did not require public schools to teach everyone.
Some were warehoused in institutions, badly treated, undiagnosed or misdiagnosed, and oft uneducated.
But many of us were there; how we struggled through school and life, without accommodations or understanding, and often the target of bullying by peers and even school officials.
Untold numbers of women and men just knew themselves inexplicably “a bit odd”, and did best they could; some succeeding, others not so well.
At worst are those who not only lacked resources, but were shunned by society’s classism, ableism, racism and sexism, and (if still alive) are found among the imprisoned, derelicts, addicts, abused and enslaved populations.

YOUR CHILDREN AND EVEN COLLEGE STUDENTS WILL LEARN DIFFERENTLY, SO YOU MUST ADJUST

We are neither inherently stupid nor incapable of learning. Learning differently means teaching differently. Find what works. Everyone has limits, but a consistent lack of success means you should use another method, as well as more time. Sometimes the learning is highly irregular in pace. Tie learning to interests to motivate your children and students.
Also, be aware that sometimes the “simple basics” may be entirely bypassed by some students who leap to master higher concepts, albeit often forever struggling with those seemingly “simple basics”. People are humans, not robots. Learning is not always linear.

COMMUNICATION IS NOT JUST SPEAKING

Never assume that just because someone is nonverbal they cannot communicate. If you’re not getting their messages, then *you* are doing something wrong. Nor should you assume that because someone is nonverbal that they cannot understand what people say (though the processing may sometimes be delayed). Nor assume that because someone has been nonverbal for years that they’ll never speak. And damn, will you get an earful.

INCONSISTENCY IN DAY-TO-DAY ABILITIES IS FRUSTRATING FOR ALL, AND NOT A CHOICE

Importantly, just because someone is able to speak or do a task one day, that does not guarantee consistent results. It’s the nature of disabilities — regardless whether considered mental or physical – all involve the brain. Brains are funny things, and many of us have a few buggy Beta-version programs in our wetware. It’s frustrating as hell for all involved.
But don’t assume the “could-then-can’t-now” is intentional. “Oh, he can hear me when he wants.” “Well, you could solve those equations just fine yesterday.” I can guarantee that after a lifetime of such, ridiculing people and punishing them for things they cannot help only increases performance stress.
While that stress might increase focus from sheer terror, it often squelches overall functioning. (Do you want me to listen to you, or try to recall yesterday’s process, or slowly figure it out on my own? I can only do one — if my stomach will stay down.)

TRAMPLE THE TROPES

Ignore the media tropes and centuries of religious hype: disabled people are neither inherently amoral, soulless and evil, nor are they infinitely happy, friendly and angelic. People are people. A few will be nasty bits, some will be profoundly good sorts, and the rest are just ordinary folks who get mad, sad and glad, who screw things up sometimes, and who will also serve others selflessly despite bearing more abuse than anyone should.
We are definitely not incomprehensible, incomplete, little autism-puzzle-pieces, unloving, unlovable, or uncaring.
We are whole people with all the same cares, needs and wants as all humans. Beware — disability happens to anyone at any time. We aren’t a Them, and YOU can be among the world’s 15% in just one day. We are all Us.

STOP “TEACHING TOLERANCE”

Because tolerance means putting up with something one doesn’t really like, or that doesn’t really belong. We want full-fledged ACCEPTANCE.
Nor should we only be acceptable if we can somehow “overcome” our differences enough to pass for Normal Real People. Trying to “pass” all the time is exhausting, and invariably breaks down, oft resulting in the [supposed] Normal Real People assuming that one is lazy, stupid, crazy, all the above, or worse.
Training children for hours a day how to artificially perform “acting normal” does not serve to help them learn how to function best in the world. Yes, of course teach good manners, social and work skills. But suppressing every twitch of one’s natural being adds to stress, making everything else yet more difficult. This is especially when performing like a “normal person” means not doing the harmless things that reduce stresses.

STOP THE BLAME

I must call out the terrifying, unaddressed assumption which underlies so much daily trauma: “The reason the disabled [children] are targeted by bullies is because they are perceived as being weird”. Despite the pervasiveness of this social theme in society, most people are functionally unaware of it, all the while instilling in their Normal People children the same message. Normal People children need to act normal, and not act like That Kind. After all, that’s how the Normal People know the others are That Kind, who’s Us and who’s Them.
But it’s the disabled and different who are taught, over-and-over-and-over that not only is it their fault for behaving or looking weird, BUT ALSO if they weren’t so weird, well then they wouldn’t be bullied. “Quit being so weird! Just say No! Just say Stop.”
Just say BULLSHIT. Because this is blaming the victim. The problem is not that everyone isn’t the same, the problem is that there are bullies.
Even worse, blaming the targets actually empowers the bullies, because the social story says it’s the victim is the one who is acting wrong, so it’s not really the bully who is to blame.
Let’s just top off all that existing anxiety and depression with the trauma of trying to seek justice, but being told again that, “Well it’s your fault, you know. Attracting attention by being weird, and bugging people. You need to quit making trouble now. You already take up too much of our time with all of your “special” needs. Quit whining and go deal with it. — But no fighting, because we’ll know it was you who started it.”
By the way, it’s not “just a kids at school” thing that everyone will “grown out of”. It continues on through college, and happens at work, too.

YOU CAN’T WALK IN THE LITTLE BOY’S SHOES;

THEY’RE FLOATING DOWN-RIVER

It is NEVER acceptable to murder disabled children. Nor should these repeated, horrifying events be considered “understandable” or “excusable”, with the murderers being pardoned just because their son or daughter had a disability.
Increasingly more prevalent in social media, the crime becomes insidiously deemed more and more acceptable. Murderers re-cast themselves as martyrs, acquiring champions to their cause. Throughout repeated blog posts and news stories, they bemoan how taking care of disabled children is just too unbearable, they had to take care of them every day of the week, there was never any relief or help. (Even though there was.) Cue the groupies’ hand-wringing and protests upon the villains’ behalf: “Oh but won’t you walk in their shoes, how they’ve given up their lives, this wasn’t at all what they wanted.”
For in true sociopathic fashion, the poor, long-suffering parents revel in the attention, announcing to the world – sometimes ahead of time — what they have done, and all the while describing themselves as the victims. The dead children (young or adult) are unwanted, and deemed unwantable, less than human just because they couldn’t speak, or needed medical treatments, or used a power chair, or didn’t play with their toys the “right way”, or wore adult diapers … No one would want to live like that; the thing’s better off dead. And what of the groupies? Well, where do you think people get such terrible ideas that it’s okay to kill one’s own children?

ENOUGH WITH THE “DISABILITY INSPIRATION PORN”.

Quit using those heart-tugging videos, walk-a-thons, telethons, and other grand-society functions to win your supposed Cosmic Brownie Points for giving us your pity. Please stop dumping upon us the largesse of your unwanted rags (so Victorian, so passé), or creating useless functions requiring us to serve as targets of unwanted helpful-helper-helpiness for your ego-boo.
Get disabled people out of “sheltered workshops”. Yes, people need work they are suited to. But the segregation and token sweatshop “wages” are an embarrassment and humiliation to all.

YES, CHILDREN GROW UP.

YEP, STILL DISABLED, BUT NOW ADULTS

Do not assume your children will remain permanently childish and incapable — they mature on their own timelines. Allow adults to be adults. Support their needs and interests, but neither dress them like children, nor expect them to live their lives in naïve pre-puberty stasis, without adult desires for socializing with adult peers, life-long learning, mastering skills for some kind of job (even if that job is “just socially productive work” rather than traditional work), and yes, having a love life, however that may be expressed.

YES, PEOPLE ALSO NEED ACCOMMODATIONS;

THAT DOESN’T MEAN “CURE”

Most disabled or different people are not looking for cures to magically change them into someone else, some kind of fantasy Normal Real person that their families wanted instead. Our differences may result from physical events, by random mutation, and / or genetics. Your genetics. We are family. I’m Me, and I like being Me. If you somehow changed all the differences in my brain, I wouldn’t be Me anymore, with all my quirks and abilities.
Of course it will be great to find a means for preventing migraines, epilepsy, fatal medical conditions, et cetera. But it’s also a sad fact that some people have been so convinced of their undesirability as disabled human beings that they can only see “cure” as a means to being an acceptable Normal Real Person. (Worst of all, some people commit suicide because they’ve been taught to hate themselves, as useless and unwanted.)
But what’s really alarming is all the fund-raising, talk, research, and work going on today to eliminate entire kinds of peoples. I’m talking about the thousands of selfish individuals and sociopaths who believe that anyone with neurological or morphological differences should not exist at all, because That Kind takes up too much time, money, and resources.
That’s not “looking for a cure” – that’s eugenics and euthanasia, the same ideas that led to the Nazi Aktion T4 program and other horrors. (In my youth, the state hospital was still in the regular habit of sterilizing people. Had I been institutionalized, I might well not have had my lovely children and grandchildren.)
Yes, we want assistance, we want things that help us achieve what we want in life. Getting the things one needs to learn effectively, to move about, attend to their own needs, to work, to play, to be a part of the community, to have lovers or families. These things should not be seen as extraordinary, special, absurd, or a waste of money, just because they aren’t the same kinds of things used by other people. 15% of the people in the world have disabilities. That is a lot of humanity, and many are uneducated, abused, neglected, avoided, or shut away, depriving the world of incredible amounts of untapped abilities and talents.

CALL OUT BULLSHIT. REQUIRE ACCOMMODATIONS. DEMAND ACCEPTANCE.

MAKE IT SO.

Re-tailored

Golly, it’s been some time since I’ve written a post. It’s not for a lack of thoughts, but rather energy.  My sleep has been disturbed by nightmares for, well, months, and the cumulative effect wears me down in the evenings.
This I had posted over years back.  As the saying describes, Friends come and go, but enemies hang around. I thought I had laid to rest some of those old demons, and perhaps I had, but now they reappear, previous horrors conflated with the memories of new experiences.

TAILOR-MADE

Tailor-made, I was.
Though all my clothes hung on me
And I was awkward as hell
Shoelaces usually tripped undone
And my hair ties came loose.
Tailor-made for being the victim
Geeky, younger, smaller, four-eyed,
Clumsy, studious, totally clueless
Socially awkward, unpopular
And best of all, face-blind.
I never knew who it was that poked me with pins
Stole my purse, squashed my lunch
Took my street clothes while in gym
Groped barely-developing breasts
Slammed me against the lockers.
Smeared clay on my chair like shit
Marked on my books, tore my assignments
Called me names, oh so many names
Or briefly pretended to befriend me
To make me the butt of a joke.
Not that I didn’t protest repeatedly
I reported the abuses properly
Told many official, protective people
Friends, family, teachers, administrators
But their responses were unilateral
“Boys will be boys,” said dad.
“You’re just being whiney,” said mom.
“If you can’t tell us who these people are,
that you ‘think’ are doing things to you,
then we can’t do anything,” said the officials.
Perhaps the real problem
Was not in what I said,
But that I was speaking up.
When I asserted myself
They redefined my reality.
Saying that what I perceived did not exist
That I was crazy, hallucinating, or on drugs
That I was just trying to attract attention
That I was making things up
When I wasn’t.
The perfect victim is someone
Who can’t identify the people that did things
Who tries to be good and please people
Who misses danger cues
Who is easy to silence.
The anger and frustration at being disbelieved
Turns into confusion and self-doubt
Maybe it’s just me
I must be wrong
Everyone says so.
Depression sinks in
I must be crazy
I keep perceiving this as reality
When everyone says it isn’t so
Isn’t that the logical conclusion?
You must trust people to help you
They are important people
They are the ones in charge
They know what’s best for you
They keep asserting you’re wrong.
When the reality is given to you by others
And they keep changing the story
It’s hard to keep your facts straight.
This is of course is only further proof
That you are crazy, and making things up.
Trust is earned, not demanded.
Funny how trust erodes
When reality is allowed to reassert itself
And I re-assert myself
Even though they re-assert:
I’m just acting out and making up stories.


The Catch

I’ve been having intermittent bouts of vertigo (some severe), along with worsening tinnitus and resulting difficulty understanding what people are saying. My GP said I got poor results on the tympanogram, and is sending me to an ENT, whom I see next week.  I’m no longer driving on the highway, and take extra care if I’m carrying my grandson.
Meanwhile, someone at school told the principal that I was “doing the wall thing”, meaning touching the wall to steady myself as I passed down a hallway.  This resulted in being called up for a Official Meeting.  By the time I left, I was feeling queasy and light-headed for entirely different reasons:

  • Being a couple hours late to phone in my absences due to migraine and due to a Emergency Room visit for vertigo, had previously earned me a stern warning for procedural lapses.
  • Going to or staying at work if feeling dizzy is prohibited because an educator with vertigo is a liability.
  • Leaving work 30 minutes early for a doctor’s appointment must be taken as sick time.
  • No “flex time” is allowed for appointments (i.e. leaving a bit early and making up that time by staying later another day).
  • Thirty minutes, half a day or a whole day all count equally as an incident of using a sick day.
  • Taking 19 sick-day events by October due to viruses, migraines, vertigo or doctor appointments is excessive, and any further such absences can result in termination of employment.
  • Which specific number is unmentioned, but up to the Powers That Be in the Human Resources department.
  • Any employee who is feverish with a virus must stay home.

Alas, this is all legal, and there seems to be a large limbo of being disabled by irregularly re-occuring conditions without actually being Disabled enough for some kind of accommodation.
Even if I somehow negotiated with H.R., the interpersonal climate with the school admin is too prickly to stay.  This is a shame, because I have a great relationship with my classroom staff/faculty.
I’m looking for a different job, hopefully something full-time that also pays well enough so I can have just ONE job in my life.  But everything I’ve seen pays fast-food wages, or else is so technically specific that my skills profile is a mis-match.
The free-floating anxiety is just HELL.

Dark, stormy days

It’s not just the weather.
Christschool’s recent post, “Fleeting Innocence, Captured Before It’s Gone” got me thinking and connecting distant points, much in the manner of the orb-weaver spider that connects a broadening spiral of nodes across our back door each night.
We slide further into a scarier world.  It is not just a world where there is less freedom and diversity plus more violence and hate-crime, but rather a world that not only publicly accepts and condones, but even demands the necessity of violence.
It’s there in the realm of education, where the requirements for instruction and inclusion have created new opportunities for some spiteful people to create long-lasting terror for those forcibly obliged to attend.  When children are harassed and bullied and tormented in school to the point they finally react, their persecutors (and those who allow such events to continue) strike back and complain, “We must be allowed to forcibly control and harm those misbehaving children so we can ‘protect’ everyone.”
It’s there in the realm of employment, where the openness of accommodations and efforts of ordinary people to use them for work, shopping and leisure has provided some people with new bases for the discrimination and harassment of their coworkers, employees, and customers.  “They shouldn’t be there if they don’t want to deal with the problems they’re going to create by existing in the public sphere.  It’s too much money or trouble, or uses up resources that Real People need.  They should just stay at home or be gotten rid of.”
It’s there in the realm of national security, where anyone who is suspected of activity can be detained for years without legal process, and tortured as well.  Even ordinary, law-abiding citizens cannot expect to have the same safeguards for rights and liberties that they used to.  “Freedom isn’t free.”
Whereas violence was previously ignored, or dismissed as unimportant, or officially diminished (downgraded) as being less severe than it was, now we have an increasing number of situations where violence is seen as not only inevitable, but also as excusable, desirable, beneficial and even necessary.
Freedom and safety are obverse and reverse of the same coin; when we seek to increase one, we lose more of the other.
Sadly, as economic and political times get more anxious, groups of people withdraw back to their tribal units in paranoia.  The backward, rigid end of conservatism or tribalism reacts to uncertainty and fear by enforcing greater controls.  To some, eliminating tolerance for the Other and superstitiously making sacrifices to appease divine forces seems to be the only way to ward off Bad Things from happening.  Somebody has to pay.  It must be Somebody’s fault.  If Somebody who isn’t behaving exactly as the codes specify is punished, then divine pleasure might be gained.  If Somebody can be blamed for causing our problems, then swift and great revenge is appropriate and balance will be restored.
But scapegoating and harming the few of the outgroup does nothing to ensure that all are safe.  Hardly anyone in the larger public will even listen, and most don’t even want to hear what’s really happening.  We are sinking in insidious evil that is frosted-over in colourful “truthiness” sugar-coating, and is obscured by galas of newslessness about celebrity foibles and the nonsense over manufactroversies.  The bits that do get reported are so shouted-over with “spin” that great chunks of the public can’t even hear them, much less realise the cognitive dissonance.  Such platitudes are just the 21st-century version of Orwellian Newspeak, where we are being sold the terrifying message that

“PAIN IS SAFETY”

Don’t you believe it.  Be careful when there seems to be a break in the clouds; sometimes it’s just the eye of the hurricane.

Going Mobile

Here, grab a cuppa and settle down, and I’m going to tell you a story … oh, pass me those scissors; I’m going to work on this quilt, too.

Once Upon A Time,

a long, long time ago (well, 25 years ago, but that’s before some of you were born), there was a bunch of disabled people who were tired of waiting around for some Fairy Godmother to grant them wishes, because you know, like that’s gonna happen! Nowadays we might call them folks, “uppity crips”, and boy howdy were they “uppity”! Why, they wanted crazy stuff, like being able to ride public transit. Yesiree!

So.  This is the story: Those folks got together and started PROTESTING, using civil disobedience.  (You have to admit, it’s pretty dang clever using sit-ins and such, especially for some folks who come with their own chairs!  NO, they didn’t all use chairs all the time; accessibility is about lots of things, not just parking spaces and curb cuts.)  Anyway, these folks created ADAPT, which stood for American Disabled for Accessible Public Transit.

(Moment’s pause to re-thread needle.)

Well, that took a few years, but it worked so well, they weren’t going to stop there! Continue reading Going Mobile

You Don't Say

“How can you not tell me when you are flunking English?!”
“Can’t you ever do anything right?”
“Do you really want to fail 8th-grade math and take it over again?!”

There is no answer that is going to be acceptable to anyone. I mean, would you go up to your parents and say, “I really want to fail beginning algebra so I can sit through units on order of operations and inequalities all over again”?
Of course not! What makes these so hard to answer is that they really aren’t questions at all. They’re accusations: You are flunking a class and didn’t care to tell me about it. (Given that my mom was angry and yelling and all but shaking me in an arm-bruising grip, it’s not surprising that I did not care to divulge the news.)
Because these are not questions, they are not really spoken to elicit answers. Woe to the literal-minded aspie child who tries to make up for the transgressions by actually attempting to answer, “I’m trying—”
“You certainly are! You’re a very trying child.”
What is being demanded is a promise that somehow everything will be made better. You wish that were so, too, and feel even more powerless to change the situation. Beyond feeling inadequate to the task at hand, you also know that attempts to communicate problems will also be met with anger, hostility, contradictory messages, and impossible demands. No matter what you do, you won’t be able to succeed.
How do you answer questions like that?
The answer is that you can’t. These are Continue reading You Don't Say

Potpourri

Updates on several stories:
In a post from almost a year ago (“That Kind“), I discussed three cases of discrimination against autistics. Cindy Earnshaw was an animal control officer and has Asperger’s, and is now filing a suit against her former employer, the city of Overland Park.
Another old post (the wheels of law grind v e r y slowly, indeed) was about “Waiting For GINA”, the Genetic Information Nondiscrimination Act.  The bill passed the House of Representatives last year, and has just been passed (unanimously!) by the Senate, and awaits signing by Dubya.  Keep your digits crossed or whatever …
More good news:  just in case you were flying ’round the dark side of the moon and somehow missed the news, Kathleen Seidel has won her Motion to Quash the absurd SLAPP-type subpoena against her, which also required information related to dozens of bloggers from her of the Neurodiversity.com Weblob blogroll, including myself. w00t!
An update to a recent post, “A shot in the arm, A slight kick in the butt” about vaccine hysteria and rising rates of highly-infectious and dangerous diseases.  A couple years ago we had mumps breaking out in several states, and now there is largest outbreak of measles since 2001, with at least 72 people in 10 different states around the country reported as having been infected (mind you, that’s just the rate of officially diagnosed and reported, which may be less than the actual prevalence), and of those people, 14 are so ill they had to be hospitalized.  The article states,

Before a vaccine was introduced in 1963, more than half a million people got measles in the United States and 500 died annually. Thanks to the vaccination program, measles is no longer endemic in the United States, and ongoing transmission of the virus was declared eliminated in 2000.

Of all the infectious diseases that can be prevented by vaccine, measles was and still is the most deadly, and is the cause of half of the one million deaths that could be prevented. The World Health Organization says that,

Children usually do not die directly of measles, but from its complications. Complications are more common in children under the age of five or adults over the age of 20.

The most serious complications include blindness, encephalitis (a dangerous infection of the brain causing inflammation), severe diarrhoea (possibly leading to dehydration), ear infections and severe respiratory infections such as pneumonia, which is the most common cause of death associated with measles. Encephalitis is estimated to occur in one out of 1000 cases, while otitis media (middle ear infection) is reported in 5-15% of cases and pneumonia in 5-10% of cases. The case fatality rate in developing countries is generally in the range of 1 to 5%, but may be as high as 25% in populations with high levels of malnutrition and poor access to health care.

I’ve also previously described the various fallacies around the conspiracy theories related to vaccines in my post, “Epidemics of bad science, vs Epidemics and bad science”. There have been studies done in four countries showing no causality between vaccines and increased rates of diagnoses of autism spectrum disorders.
Well, off to deal with the crisis du jour … more later.

One in the crowd

Look at all those honeybees, buzzing around the hive! One of them is named Kathleen. (Can you tell them apart? I sure can’t — they’re all sisters.) So where’s Kathleen? “Yoo-hoo! Which one of you is Kathleen?”

“I am Kathleen!”

“I am Kathleen!”

“I am Kathleen!”

“I am Kathleen!”

Expect to see a lot of blogging bees styling themselves as Kathleen, a la “I am Spartacus.” (Or check out the LOLcat by DKMNOW.)

Due to scholastic issues, I am late making this post. If you’ve not already heard, a blogger, Kathleen Seidel of the Neurodiversity.com weblog, was recently served with a subpoena by a lawyer in a current case. Kathleen has long blogged about the lack of scientific credibility of the vaccines-cause-autism idea, and the court case deals with such. As a citizen-journalist, Kathleen has commented upon this case and others like it, and her posts are copiously annotated with the supporting references from public domain documents. Other bloggers with legal backgrounds have commented that this kind of legal action seems to fall into the category of a “SLAPP”, Strategic Lawsuit Against Public Participation:

This form of litigation is frequently filed by organizations or individuals to intimidate and silence critics or opponents by burdening them with the cost of a legal defense so that they abandon their criticism or opposition.

Walter Olson of the Overlawyered blog calls the subpoena a “fishing expedition” and “intimidation”. Not only are the demands in the document incredibly broad and laboriously demanding, they are simply irrelevant to the case. Kathleen asserts that she is not involved in the case, and she does not have any special information relevant to the case.

As she stated in her reply (a “motion to quash”),

9. The subpoena commands production of “all documents pertaining to the setup, financing, running, research, maintaining the website http://www.neurodiversity.com” – including but not limited to material mentioning the plaintiffs – and the names of all persons “helping, paying or facilitating in any fashion” my endeavors. The subpoena demands bank statements, cancelled checks, donation records, tax returns, Freedom of Information Act requests, LexisNexis® and PACER usage records. The subpoena demands copies of all of my communications concerning any issue which is included on my website, including communications with representatives of the federal government, the pharmaceutical industry, advocacy groups, non-governmental organizations, political action groups, profit or non-profit entities, journals, editorial boards, scientific boards, academic boards, medical licensing boards, any “religious groups (Muslim or otherwise), or individuals with religious affiliations,” and any other “concerned individuals.”…

15 … Plaintiffs and their counsel seek not only to rummage through records that they suspect pertain to themselves, but also through my family’s bank records, tax returns, autism-related medical and educational records, and every communication concerning all of the issues to which I have devoted my attention and energy in recent years.

This is an incredible amount of documentation. Who would even keep all of these kinds of records? Many sorts of library searches do not give you “receipts”. And, as originally cited in the subpoena, what sort of search engine is “Lexus Nexus”, an automotive dealership? They probably mean LexisNexis(R), as Kathleen properly refers to it. (Spelling error or Freudian Slip?) And what’s with the “religious groups (Muslim or otherwise)”? Her religious affiliations (or lack thereof) have no bearing on the lawsuit.

The subpoena itself lists in those requested documents, “written or verbal communications” between her and a very, very long list of people or groups, which reading through is quite quickly apparent simply her blogroll, meaning all the 100+ blogs that she has links to on her sidebar. Mine is one of that large number, probably because my blog is listed in the Autism Hub feed. Mind you, I have never even mentioned anything about this particular court case on my blog.

So, disclosures: I have no special information about this court case, and I don’t even know any of the people involved. I don’t even know Kathleen personally, and have never met her. I do not work for her or for Neurodiversity.com, and have never even been to New Hampshire. I’ve probably made a few comments on her blog, as I’ve made comments on all sorts of blogs across the World Wide Web, but her blog is not listed on my blogroll. I do have a family member diagnosed with an ASD. I work in school settings with students who have various educational needs, including ASDs. I do not work for a law company, for a pharmaceutical company, or for a medical company.

Asking Kathleen for the least crumb of communication between herself and the numbers of people mentioned simply because they are on her blogroll is absolutly nutz. Can you imagine how many endless pages of paper all those requested documents would be? (What if you printed out every e-mail you had ever sent or received? Do you keep every e-mail you have ever sent or received? Neither do I.)

The responses to this action in the blogosphere have been incredible; big names like Pharyngula, Orac, and Steven Novella have taken time to comment upon action. Liz from I Speak of Dreams is keeping a running list. I too think the legal action is absurd.

One bee from the hive stops to turn over. Instead of being able to look at the viewer, she is displaying her underside, and we have a great shot of a bee’s ventral abdomen, essentially her rear end. Yeah, check out THAT waggle dance, folks.

Buzz Off!

No, “buzz off” does not mean that I am being grumpy and telling everyone to Go Away. There are apparently a lot of other people out there who are grumpy about Mosquitos, but not the insect kind. The story (like most) gets complex very fast.
So. There are some young people who hang out in front of shops or public areas and are annoying, even to the point of committing misdemeanors. This is hardly a new problem of urban settings; doubtless ancient Greek and Roman shopkeepers complained about much the same thing. In addition to the primary problems of what the yobbos / chavs / hooligans (pick your fave term) may engage in, there’s the secondary problem of their presence intimidating customers and driving away trade.
Of course, not all young people act like this. In fact, very, very few do. And young people, like people of other age groups, like to get together with their pals and socialise. Of course, when you’re young you don’t have your own place, and not everyone wants to hang around the living room where dad’s watching Top Gear or yet another history programme about some war or another. So kids hang around in parks, on sidewalks, in malls, and other public areas. And then people complain because shockingly, there are kids hanging around. Well, duh; few can afford to spend lots of cash at movie theatres or pool halls or video game parlors, and if you’re not spending, they don’t want you there.
Back in 2005, Howard Stapleton realised that he could use teens’ better hearing against them. In theory, young people can hear up to 20 kHz (20,000 Hertz), but as people age they lose this ability due to presbycusis. Although most older adults can pass a basic hearing exam with flying colors, such exams only test up to 8,000 Hz, because audiologists are concerned with how well people perceive common speech and environmental sounds. (This concept also assumes that those targeted have not had any hearing loss due to listening to loud music in vehicles, headphones, and / or concerts.) Thus, the Mosquito device was born.
According to a distributor’s description, these speakers broadcast a 17.5-18.5 kHz tone at 75 decibels. Although not damaging, the whine becomes very annoying after a couple of minutes, and those who can hear it usually leave after a few minutes, although the unit runs for 20 minutes before shutting off. It can be heard 15 meters / 50 feet away, with stronger models audible as far as 90 meters / 300 feet away.
The Mosquito device proved popular with a number of shopkeepers and other business owners; some 3500 units have been installed around the UK, to prevent young people from congregating outside of stores, rail stations, car parks, industrial areas, city parks, and even school grounds (used after hours). Now it’s being sold in the U.S. and Canada as well.
Naturally, there were protests about the use of the devices. The prototype was banned in its place of inception, Newport, South Wales. Although legal elsewhere, other groups have taken up complaint, and not just young people:

Scotland’s Commissioner for Children and Young People, Children in Scotland, and the Scottish Youth Parliament fully support the campaign launched today in England against the use of the Mosquito device.

So too is Liberty, the National Youth Agency, the Children’s Commissioner for England, which is spearheading the Buzz Off campaign.
Frankly, I find the whole idea of using sonic deterrents as weapons (attack devices) against young people to be abhorrent. These things target and punish all young people present for the actions of a few. You get what you give, so how is being deliberately obnoxious supposed to encourage better social behavior in others? We don’t like it when people go around playing their music too loud, so why is it okay to broadcast high-pitched whines that are meant to get on people’s nerves?
Furthermore, the manufacturers and users assume that only young people can hear these sounds, and that simply isn’t true. I’m 47 and I can hear such frequencies (despite the tinnitus), and a 75 kHz noise is also pretty damn loud, even if it’s not technically at the damaging threshold. If I came across a shop that was using this sonic attack, the shopkeeper would certainly get an earful from me! There’s too much noise as it is, without adding gratuitous noise.
It’s not that I don’t sympathise with business owners and other citizens who are dealing with the effects of antisocial or criminal behavior. But this kind of antisocial retaliation hurts everyone, and is blatant discrimination.

Things that make you say, "Hmn…"

Fresh news story about the Judge Rotenberg Educational Center from the Associated Press:
The security camera videotapes of recent incidents at the JRC were destroyed, despite direct orders for them to be saved. The incidents involved two students who were wrongly given numerous electrical shocks by staff members, as a result of prank phone calls.

One student was shocked 77 times and the other 29 times after a prank caller posing as a supervisor ordered the treatments at a Judge Rotenberg Educational Center group home in August. The boys are 16 and 19 years old and one was treated for first-degree burns.
The Disabled Persons Protection Commission planned to release the report Tuesday concluding that one of the teenagers was severely physically and emotionally abused by the treatments. The commission has referred the case to the Norfolk district attorney’s office.

One of the Commission’s investigators had requested copies of the tapes because they were needed to complete a report.

But school officials declined, saying they “did not want any possibility of the images getting into the media.” The investigator told the school to preserve a copy so state police could use it in their criminal investigation. A trooper later told the investigator the tapes had been destroyed.

Amazing how often tapes of alarming or incriminating events get erased (Watergate) or destroyed (waterboarding).

State Sen. Brian Joyce, who has long sought to ban shock therapy from the school, said Israel and his staff should be investigated for obstruction of justice.
“I believe the tape was intentionally destroyed because it was incriminating,” said Joyce, a Democrat. “I intend to ask the attorney general to investigate.”